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About the Albinism Fellowship

The Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with Albinism and their families. We also provide information about the condition to professionals working with people with Albinism. All our Trustees are people with Albinism or parents of children with Albinism.

The Albinism Fellowship is a registered charity in England and Wales: 1196004 as well as Scotland: SC009443. The Albinism Fellowship was founded in 1979, by our late President Dr. W. O. G. Taylor, a retired Ophthalmologist.



All people with Albinism have the opportunity to realise their full potential.


  • Provide information about Albinism.

  • Raise positive awareness of the condition.

  • Arrange opportunities for people to meet and receive support.

  • Encourage the sharing of experiences.


The services we offer include:

  • Twice yearly magazine, 'Albinism Life'

  • Website resources

  • Regional meetings around the UK and Ireland on a regular basis

  • Telephone support on +44 7946 457979

  • Annual Regional Events

  • Weekend National Conference every two years (subject to funding)

  • Email support via

Voluntary Organisation

We are a voluntary Organisation. We have a board of Trustees who keep the organisation running.  

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