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Conference Fundraising Goal: £10,000
Raised so far: £452 |
Family Weekend Conference
11-14th Oct 2013
Ribby Hall Village (near Blackpool), Lancashire
Accommodation now available to book
Welcome to the Albinism Fellowship website.The Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. We also provide information about the condition to professionals working with people with albinism, and other appropriate interested parties. Our focus is on the United Kingdom & Ireland, but we also work closely with other albinism support groups around the world. For the latest news from the Fellowship and details of upcoming events, please see the News & Events section. For information about our mission, the services we offer, how to join and how you can support our work, please see the About the Fellowship section. For general information and articles about albinism, along with personal stories from people with albinism, please see the About Albinism section. If you have any queries about albinism or the Fellowship, please get in touch. You can also discuss albinism issues on our Online Discussion Forum. Latest Updates:16/05/2013 - Programme added for Connect Albinism Event in Newtonabbey (near Belfast). 25/04/2013 - News Page updated with a report from the Cork Albinism Day. 20/04/2013 - More information on the Family Weekend Conference added. Keep an eye on fundraising progress with the new gauge.
08/03/2013 - One of our members will be in an RTE Radio documentary today, see News Page for details.
26/03/2013 - There is now a 'Hermansky Pudlak Syndrome Network UK' group, providing support to families in the UK affected by HPS. For details, see their website at www.hpsnetwork.co.uk. 22/03/2013 - Due to adverse weather conditions the Albinism Information Day in Derry/Londonderry and the Sandwell Albinism Family Day tomorrow have both been CANCELLED. 16/03/2013 - Accommodation for our Family Weekend Conference is now available to book. See the Conference Page for full details. 15/03/2013 - News Page updated with a media opportunity and information about AF's support for Human Rights Watch Film Festival. 13/03/2013 - News Page updated with a request for an albinism research project. 10/03/2013 - Please help support AF's application for a grant from the Galaxy Hot Chocolate Fund by voting for us. 06/03/2013 - Information about an upcoming Albinism Family Day in the West Midlands added to the News Page. 04/03/2013 - Information about the London Summer Meeting & BBQ added to events page. 17/02/2013 - Report from yesterday's Family Day & AGM in Nottingham added to the News Page. 10/02/2013 - AF Chair Mark Sanderson and Lorna Stacey were interviewed yesterday on BBC R4. You can now listen to their interview online - The segment starts at around 47mins. 31/01/2013 - Information about 4 upcoming events in Ireland added to the Events Page. 30/01/2013 - Albinism Fellowship response to last week's Undateables TV show added to the News Page. 07/01/2013 - Happy New Year! Members please note that subscription renewals are now due: Click for details. |
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