This policy sets out how albinism.org.uk uses and protects your personal information, including data from your use of our website.
Albinism Fellowship is committed to protecting your personal information, being transparent about what we hold and ensuring that we use it in accordance with applicable laws concerning data protection. Our Charity is registered in Scotland – registration number is SC009443.
We do not trade personal data for commercial purposes and will only disclose it if required by law, or if it is with your consent. Albinism.org.uk uses providers based in the European Economic Area to process personal data.
This policy was updated in June 2019 to show that we are adhering to the new General Data Protection Regulation (GDPR), which comes into force on the 25th May 2018.
Please email us at firstname.lastname@example.org for any data protection queries.
Read more about the information we process and store:
Members, Donors, Volunteers and Fundraisers
What we collect
As we get to know you, we will collect the following types of information:
- Name and title/s
- Full postal address
- Your date of birth
- Your gender
- Contact information such as email address and telephone number
- The type of Albinism you or your family member has
- Any feedback or special requirements that you may choose to give us
How much of the information we collect depends on the type of relationship you have and the information we build in the course of your relationship with us.
What we do with the information we collect
We will use your information to:
- Provide you with the services, products or information you asked for
- Administer your contact details and give you the opportunity to change your preferences as well as amend errors and update your data
- Keep a record of your relationship with us (including your feedback)
- Manage donations (including processing Gift Aid)
- Support your fundraising activities and events
- Analyse it in our database for statistical review purposes (looking at patterns of myasthenia such as age, geography, occupation or gender)
- Help us to improve our products and services
- Ensure we know how you prefer to be contacted
- Flag you record data – for example if you request to be removed from certain mailing lists, opt out of any specific data processing, or if you have special requirements
We need to keep the details of financial transactions for seven years after the financial year of a donor’s last gift, in the event of an audit or gift aid enquiry.
If you say that you would like to hear from us, you will be added to our mailing list and will receive regular updates on news, events and fundraising activities. You can choose to be contacted by post, email, telephone and / or text.
You can change your contact preferences at any time, by telephoning us on 01282 771 900 or by contacting us by email at email@example.com
How we keep your information safe
We transfer all personal information to our own database which is EU hosted. This system is kept updated with your contact preferences. We do not store sensitive personal information that you share with us unless there is a clear and valid reason for doing so.
We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect.
Visitors to our website
When you visit www.albinism.org.uk we use a third-party service, Google Analytics, to create a “cookie” on your computer, mobile or other device.
A cookie is a small file containing an ID number which is used to uniquely identify your browser and track each site you visit that has Google Analytics enabled.
If we do want to collect personally identifiable information through our website, we will be up front about this. We will make it clear when we collect information and will explain what we intend to do with it.
Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.
You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. This may prevent you from taking full advantage of the website.
As an individual whose personal data is processed by albinism.org.uk you have the following right:
- The right to be informed
- The right to access the data we hold about you
- The right to object to direct marketing
- The right to object to processing carried out on the basis of legitimate interests
- The right to erasure (in some circumstances)
- The right to data portability
- The right to have your data rectified if it’s inaccurate
- The right to have your data restricted or blocked from processing
To exercise any of these rights, please contact us at firstname.lastname@example.org or telephone our head office on 01282 771 900.