For links to albinism support groups outside the UK, please see the Albinism Around the World page.

If you would like to suggest a link, please get in touch.

Albinism Information

Genetic information from the International Albinism Centre.

Positive Exposure, founded in 1997 by former fashion photographer Rick Guidotti, challenges the stigma associated with difference by celebrating the beauty of human diversity.

Italian site on albinism. (Text in Italian)

Hermansky Pudlak Syndrome (HPS) is an extremely rare form of albinism, which can involve a variety of complications associated with bleeding and respiratory disorders.

The Hermansky-Pudlak Syndrome Network UK (HPS Network UK) is a ‘not for profit’ support and advocacy group for people and families dealing with HPS and those seeking testing for the syndrome.

We provide information to those affected by HPS and their doctors and we attend events to raise awareness. We are staffed by volunteers. We work within the UK and are affiliated with the Hermansky-Pudlak Syndrome Network Inc in the US.

The UK Co-ordinator is Chris Fenlon, who can be contacted by e-mail at chris@hpsnetwork.co.uk, Tel: 01442-399822, for more information.

Hermansky-Pudlak Syndrome Network Inc. is a US-based volunteer self help group for people and families dealing with HPS and related disorders.

See above for the UK HPS Network.

Albinism online community (text in Italian, but with an English translation coming soon).

Information about albinism from the Office of the UN High Commissioner for Human Rights. Includes information about albinism and the human rights issues that some people with albinism face around the world.

Also includes stories from members of the albinism community around the world.

Products, Services and Exhibitions

Postal lending library offering a large choice of audio books in open formats.

Supplier of products for the blind and visually impaired.

Supplier of computer software for people with visual-impairments.

Supplier of assistive technologies for the blind and visually-impaired.

Suppliers of assistive technologies and software for the blind and visually-impaired.

Supplier of UV protective clothing, sunscreen and other UV protection products.

Albinism Fellowship members can get 10% off by entering the discount code ‘ALBINISM’ when placing their order.

Other low-vision and disability organisations

UK charity which provides free and confidential support for blind and partially sighted people in all aspects of their lives.

Independent non-profit organisation working to promote full access to and participation in further and higher education for students with disabilities and to enhance their employment prospects on graduation.

Industry body with the aim of raising the awareness of assistive technology

The National Education Centre for Blind Children, Ireland.

(Formerly St Joseph’s Centre for the Visually Impaired.)

This site provides information on public services and entitlements in Ireland.

Irish Government department responsible for providing support to people with disabilities.

UK Government website with information for people with disabilities.

Support Group for Parents of Blind and visually impaired Children in Ireland.

Genetic Alliance is a national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.

The Guide Dogs for the Blind Association is responsible for the breeding and training of guide dogs for people with severe visual impairments.

Irish Guide Dogs for the Blind is a national charity dedicated to helping persons who are blind or vision impaired and families of children with autism to achieve improved mobility and independence.

Providing information about health and social services in Ireland.

The National Governing Body for sport and leisure activities for blind and visually impaired people in Ireland.

UK organisation providing support to parents and carers of children with visual impairments.

Charity providing information, advice, support and services for visually impaired children. Help offered to families, carers and professionals.

NCBI is a not for profit charitable organisation which provides support and services to people experiencing sight loss in Ireland.

The National Council for Special Education (NCSE) was set up to improve the delivery of education services to persons with special educational needs arising from disabilities with particular emphasis on children.

Nystagmus Network is a UK-based self-help group set up in 1984, providing support for adults and children with nystagmus, their parents and teachers and fostering research into the condition.

RNIB is the UK’s leading charity offering information, support and advice to over two million people with sight loss.

Special Needs Parents Association exists to support all parents of persons with special needs and disabilities irrespective of age or diagnosis, by promoting on a national level, improved treatment, education, welfare and acceptance for our children.

Information on Reasonable Accommodation for people with disabilities in Irish school examinations.