A A A A A

Important Sports Campaign

We are proud to support the campaign to end the discrimination within international blind sport against players classified as B4. Currently, those wanting to compete in any blind sport at competitive International level have to go through an eyesight classification process. An athlete’s visual field and acuity is tested. Depending on severity, athletes will be classified as either B1, B2, B3 or B4. Those classified…

Baby Box Launch for International Albinism Awareness Day

Welcome new boost for mums and dads of young children with albinism While the birth of a new baby is an occasion to celebrate, parents of children born with albinism often find that support for children with this rare genetic condition is hard to access. To mark International Albinism Awareness Day* on June 13th, the Albinism Fellowship has stepped in with a new Baby Box…

Covid-19 Shielding Letters Statement

We are aware that some people with Albinism have received shielding letters from their GP’s and we have had specific queries on this issue. The clinical advice that we have received is that Albinism in isolation is not associated with compromised immunity and that there would be no reason to shield in these cases. There are some syndromic forms of Albinism eg Hermansky-Pudlak Syndrome and…

Grant From Jeans For Genes Day 2019

News release: PEOPLE WITH ALBINISM RECEIVE A GRANT FROM JEANS FOR GENES DAY 2019 July 24, 2019: The Albinism Fellowshipis celebrating after receiving the news they will receive a grant from Genetic Disorders UK, the national charity that organises the annual fundraising day, Jeans for Genes Day. This grant, from funds raised on the day, will be used to fund regional meetings for people with albinism. Roselle…

Nystagmus Awareness Day – 20th June

With Nystagmus Awareness Day on 20 June 2019 this year, here is a new update on activities from the Nystagmus Network, a charity that the Albinism Fellowship works with closely. How amazing are you? In the run up to Nystagmus Awareness Day 2019, we’re once again sharing some amazing nystagmus success stories. You can read all our amazing stories on our blog, here, on our Facebook Page or…

International Albinism Awareness Day

International Albinism Awareness Day was celebrated on Thursday 13th June 2019. Our volunteer PR officer Andrew Bennett has been working with some of our supporters living with Albinism to produce some positive stories that we hope to get into the media around 13th June, and we’ll post details and links on this site as soon as anything is confirmed. Our vice chair Mark Sanderson and two…

Report from Glasgow Event

We returned to the Kinning Park Complex in Glasgow on Sunday 28th May for the Scotland Albinism Event. Over 30 people joined us for the afternoon, including both families and adults with albinism. It was great to see some new faces as well as those who attended last year’s event. During the afternoon, the children enjoyed some arts and crafts, while the parents had a…