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Grant From Jeans For Genes Day 2019

News release: PEOPLE WITH ALBINISM RECEIVE A GRANT FROM JEANS FOR GENES DAY 2019 July 24, 2019: The Albinism Fellowshipis celebrating after receiving the news they will receive a grant from Genetic Disorders UK, the national charity that organises the annual fundraising day, Jeans for Genes Day. This grant, from funds raised on the day, will be used to fund regional meetings for people with albinism. Roselle…

Nystagmus Awareness Day – 20th June

With Nystagmus Awareness Day on 20 June 2019 this year, here is a new update on activities from the Nystagmus Network, a charity that the Albinism Fellowship works with closely. How amazing are you? In the run up to Nystagmus Awareness Day 2019, we’re once again sharing some amazing nystagmus success stories. You can read all our amazing stories on our blog, here, on our Facebook Page or…

International Albinism Awareness Day

International Albinism Awareness Day was celebrated on Thursday 13th June 2019. Our volunteer PR officer Andrew Bennett has been working with some of our supporters living with Albinism to produce some positive stories that we hope to get into the media around 13th June, and we’ll post details and links on this site as soon as anything is confirmed. Our vice chair Mark Sanderson and two…

Report from Glasgow Event

We returned to the Kinning Park Complex in Glasgow on Sunday 28th May for the Scotland Albinism Event. Over 30 people joined us for the afternoon, including both families and adults with albinism. It was great to see some new faces as well as those who attended last year’s event. During the afternoon, the children enjoyed some arts and crafts, while the parents had a…

International Albinism Awarenes Day – Media Activities

Tuesday, June 13th, 2017 is International Albinism Awareness Day. There will be activities around the world to raise positive awareness of albinism on this day, which is officially backed by the United Nations. If you or someone in your family have albinism and you live in Northern Ireland or the Republic of Ireland, Scotland or Wales, would you like to spread a positive message about…

Channel 4 TV – The Secret Life of 4 and 5 year olds. Invitation to families

National broadcaster Channel 4 TV is about to start filming its award-winning series ‘The Secret life of 4 and 5 years old’ again this summer. This programme follows four and five year olds as they take their first steps towards independence and embark on the new challenges of going to school. The series follows their development from the moment they meet for the first time,…

Born Too White, broadcast on BBC TV, on Thursday 23 February

The programme, ‘Born Too White,’ which featured a doctor with albinism travelling to two African countries to find out about the plight of people with albinism, was a reasonably well balanced feature. We note the interest of members of the Albinism Fellowship and other people with albinism in the programme and we feel that Dr Oscar Duke was an interesting person to front this film.…

Report from Wales Event

Our recent gathering in Cardiff was the first we have had in Wales for a long time and was the first chance for many of the children there to meet another person with albinism – always a magical moment! The children made friends while enjoying a big bouncy castle and the challenge of a bungee run while the adults shared experiences and swapped contact details.…