Social and emotional Archives

Is it hard for you as parents?

Initially, in the beginning it was very hard because we did not know what we were dealing with and there were lots of ‘unknowns’. As parents, it is the not knowing what to do, in the early stages, that is the most difficult time. After 10 years it becomes second nature and giving a commentary of hazards on a walk with her or juggling for…

What benefits can I apply for?

Most people with albinism can apply for Disability Living Allowance. There are several components to this and it is awarded at several levels. The form filling takes a while and it can be difficult to understand. A good idea is to keep a diary every day for a while and note all the things that you do over and above that which you would do…

What was it like when you found out that she had Albinism?

For us it was easier. When we had the condition diagnosed we learned how to take practical steps to as to how best to help her. Meeting others overcoming the same issues was a great help as parents. Meeting adults we albinism was very reassuring.

Does it bother her that she can’t see very well?

She doesn’t know any different.

What should I do if my child gets called names?

If it is in school, contact the school and tell them, discretely if necessary, what has happened. All schools should have procedures to deal with such incidents and hopefully it can be nipped in the bud. Give your child answers that they feel confident in giving when they are asked questions by their peers. Gently prepare them and talk to them about how they might…