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Initially, in the beginning it was very hard because we did not know what we were dealing with and there were lots of ‘unknowns’. As parents, it is the not knowing what to do, in the early stages, that is the most difficult time. After 10 years it becomes second nature and giving a commentary of hazards on a walk with her or juggling for a position to view the TV around her are just what we do as a family.

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