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Important Sports Campaign

We are proud to support the campaign to end the discrimination within international blind sport against players classified as B4. Currently, those wanting to compete in any blind sport at competitive International level have to go through an eyesight classification process. An athlete‚Äôs visual field and acuity is tested. Depending on severity, athletes will be classified as either B1, B2, B3 or B4. Those classified…

Baby Box Launch for International Albinism Awareness Day

Welcome new boost for mums and dads of young children with albinism While the birth of a new baby is an occasion to celebrate, parents of children born with albinism often find that support for children with this rare genetic condition is hard to access. To mark International Albinism Awareness Day* on June 13th, the Albinism Fellowship has stepped in with a new Baby Box…

Covid-19 Shielding Letters Statement

We are aware that some people with Albinism have received shielding letters from their GP’s and we have had specific queries on this issue. The clinical advice that we have received is that Albinism in isolation is not associated with compromised immunity and that there would be no reason to shield in these cases. There are some syndromic forms of Albinism eg Hermansky-Pudlak Syndrome and…