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Albinism is a condition that occurs around the world, in all races, cultures and communities. Many countries have their own equivalent of the Albinism Fellowship, providing support and advice to people with Albinism.

Albinism Organisations Worldwide

Africa

Regional Action Plan (RAP) on Albinism in Africa

The Regional Action Plan is the first-ever regional mechanism to proactively address eradicating discrimination and violence against persons with albinism in Sub Saharan Africa. Its overarching objective is to monitor the true impact of efforts to protect and integrate persons with albinism by multiple stakeholders across Africa. In particular, the plan consists of concrete and specific measures to realize the enjoyment of peace and human rights by persons with albinism. It is developed from recommendations made by the Independent Expert, various human rights bodies and mechanisms at the UN and AU levels. These recommendations have been further refined into various objectives which are achievable over the immediate, short to medium term (0 to 5 years) while triggering long term initiatives (beyond five years).The objectives are divided into four clusters: prevention, protection, accountability and equality and non-discrimination.

For more information www.acitononalbinism.org.

Albinism Society of Kenya (ASK)

Wilfred MainaAfrican Braille Center 020-601-212 or 020-608-692.

Albinism society of South Africa (ASSA)

Focus House 86 loveday street, PO Box 9881, Johannesburg Tel/Fax: 0927 11 838 65 29 President: Nomasonto Mazibuko

Burkina Faso

Association nationale pour l’intégration des personnes albinos (ANIPA)04 BP 8371, Ouagadougou 04Tel: (226) 76 64 94 95E-mail: anipabf@yahoo.frPresident: Fabéré Sanon

Burundi

Albinos sans frontièresBP 1228, Bujumbura E-mail: albinossf2002@yahoo.fr

Cameroon

Association mondiale pour la défense des intérêts et la solidarité des albinos (ASMODISA)BP 13018, YaoundéTel: (237) 21 73 40 Fax (237) 21 73 35E-mail: asmodisa@yahoo.frPresident: Jean-Jacques Ndoudoumou

Congo – Brazzaville

SOS Enfants vulnérables sans frontières153 rue Komono-TalangaïBP 9179, BrazavilleE-mail: sosevf@yahoo.frPresident: Symphorien Sigrid Ayara

Gabon

ALBARosalie Ngoua: B.P.: 2415 Libreville, GabonTel: (241) 06253086B.P.: 15377 Libreville tel; (241) 07521635E-mail: rosaliengoua@yahoo.fr

Mali

(association en projet)Soumaïla Bayni Traore, BamakoTel: (223) 244 16 05 – (223) 649 22 72E-mail: baynisoumaila@yahoo.frOusmane Wele Diallo, Tel (223) 646 84 44E-mail: lamo_n1@yahoo.fr

Central African Republic

Association nationale des albinos de Centrafrique (ANACA)BP 1868 Bangui, CentrafriqueTel: (236) 61 34 39 Fax (236) 61 00 78E-mail: anaca_rca@yahoo.fr

Democratic Republic of Congo

Action pour la protection et l’intégration des personnes albinos (APIDA)GomaPresident: Constantin WilondjaE-mail: apidagl_afriquecentral@yahoo.fr

Association pour la promotion et le développement de la personne albinos (APRODEPA)

1 avenue du 30 octobre – c/Makiso, immeuble CEDI,Kisangani, province orientale, RDCPresident : Jeanjanvier Nduma TanganyikaTel: (243) 812 36 60 54E-mail: servainndumba@yahoo.fr

Albinos sans frontières

President : Auguy Bajikila Mudimba28 B, quartier Mboloko, commune de Matete, Kinshasa ; BP 13.588 Kinshasa I,E-mail: asfasblong@yahoo.frWebsite: www.asf-awb.orgTel: (243) 999 93 93 23

Republic of Benin

Association des hommes de bonnes volontés pour le développementBP 155, PobeE-mail: ahbvolonte@yahoo.frCoordinator: Anderson Bonou-Oussou

Senegal

Association nationale des albinos du Sénégal (ANAS)Centre communautaire des albinos du SénégalLinda RobinsonQuartier Sampathé IIBP 3046 ThiesTel: (221) 535 83 46 / 951 30 36 Tel face au centre 956 54 41E-mail: anassenegal2006@yahoo.frPresident : Moumouny Cissokho

Alliance nationale pour la promotion à la réinsertion des albinos au Sénégal (ANPRAS)

Siège social : Quartier des Abattoirs, BP 294, TambacoundaTel: (221) 981 15 38President: Aboubakry Sakho (Cellphone: (221) 642 91 14)E-mail: arattfr2001fr@yahoo.fr

Tanzania

Tanzania Albinos SocietyPO Box 9644, Dar el SalamTel: 255 51 203-8113, extension 40President Hamisi Mwaimu

Togo

Cercle d’entraide aux albinos malvoyants (CEAM)BP 20003, LoméE-mail: ceamong@hotmail.comPresident: Soufiane Bayur

Nigeria

The Albino Foundation76b Adeniyi Jones AvenueIkejaLagos, NigeriaTel: 234-1-2707926E-mail: albinofoundation@aol.comWebsite: www.thealbinofoundation.com/

Liberia

Liberia Albino SocietyLogan TownBushrod Island1,000 Monrovia10 LiberiaMonteraddo CountyRepublic of LiberiaContact: Patricia NC Logan, Tel: +231 0888-419-159

Europe

France

Génespoir3 rue de la Paix, 35000 RennesTel 33 877 58 20 33President Béatrice JouanneWebsite : www.genespoir.orgE-mail: genespoir@wanadoo.fr

SOS Albinos

64 avenue des Gobelins, 75013 ParisFax: 33 1 45 87 03 38E-mail: pascale.jeambrun@wanadoo.frPresident Salif Keita

North America

United States

National organization for albinism and hypopigmentation (NOAH)PO Box 959, East Hampstead, NH 03826-0959, USATel: (1) 603 887- 2310Fax: (1) 800 648-2310E-mail: info@albinism.orgWebsite: www.albinism.orgPresident: Mike McGowan

Hermansky-Pudlak Syndrome Network Inc

One South RoadOyster Bay, New York 11771-1905Tel: (1) (516) 922-3440 / (Toll Free: 1(800) 789-9HPS)Fax: (1) (516) 922-4022E-mail: hpsnet@worldnet.att.netWebsite: www.hpsnetwork.org/The HPS Network also has an affiliated organisation ‘HPS Network UK’ in the United Kingdom.See www.hpsnetwork.co.uk.

Australasia

Australia

Albinism Fellowship of AustraliaWebsite: www.albinismaustralia.org

New Zealand

Albinism TrustWebsite: www.albinism.org.nz