Albinism Fellowship Home Page

Welcome to the Albinism Fellowship website.

The Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. We also provide information about the condition to professionals working with people with albinism, and other appropriate interested parties.

Our focus is on the United Kingdom & Ireland, but we also work closely with other albinism support groups around the world.

For the latest news from the Fellowship and details of upcoming events, please see the News & Events section.

For information about our mission, the services we offer, how to join and how you can support our work, please see the About the Fellowship section.

For general information and articles about albinism, along with personal stories from people with albinism, please see the About Albinism section.

If you have any queries about albinism or the Fellowship, please get in touch. You can also discuss albinism issues on our Online Discussion Forum.

Latest Updates:

19/11/2014 - News Page updated with a report and photos from the Ireland Conference.

18/11/2014 - We hope everyone enjoyed the Ireland conference, you can now download the presentation slides from the Conferences Page.

04/11/2014 - News Page updated with a note on fundraising.

21/10/2014 - Details of Chidlren's Christmas Party in Reading added to events page.

05/10/2014 - Details of Family event and AF AGM in Nottingham added to events page.

04/10/2014 - Details of a Family Resource Event at Childvision, Dublin added to News Page.

28/09/2014 - Back issues of Albinism Life magazine are now available to download from this website. Recent issues remain exclusive to AF members.

25/09/2014 - Details of a South London Family Get-Together added to events page.

16/09/2014 - Booking for the Ireland Conference is now open. Bookings must be received by 14th October.

19/08/2014 - News Page updated with information about upcoming events run by VICTA.

04/08/2014 - Accommodation information for the Ireland Conference is now available.

03/07/2014 - Please note, the date of the Ireland Conference has changed to Saturday 15th November. We apologise for any inconvenience.

20/06/2014 - Report & photos from the Dublin BBQ added to the News Page.

1#4/06/2014 - We are pleased to announce the date and venue of our next one-day conference in Ireland. See the News Page for details.

09/06/2014 - News Page updated with the presentation on the NINA Study from the Belfast event and information about an upcoming Visual Impairment training session.

07/06/2014 - We are pleased to announce the date of our next Family Weekend Conference. See the News Page for details.

02/06/2014 - News Page updated with a report from the Belfast Connect Albinism event.

24/05/2014 - Added update on Belfast mini-marathon to the News Page.

19/05/2014 - We are looking for volunteers who would be willing to be interviewed for a short video on albinism. See the News Page for more details.
Added information about 'Wobbly Wednesday,' international nystagmus awareness day, to the News Page.

28/04/2014 - Details of the London Summer Meeting & BBQ added.
Added information about a Nystagmus Network Open Day to the News Page.

16/04/2014 - Programme added for the Belfast Albinism Information Day on 31st May
Fundraising opportunity in Dublin added to the News Page.

14/04/2014 - Details of Dublin Albinism Day & BBQ added.

09/04/2014 - News Page updated. One of our trustees and his neighbour are doing a 100 mile sponsored walk in aid of AF.

28/03/2014 - Nottingham family event added.
The Belfast event originally scheduled for 10th May has had to be rescheduled again to 31st May. Apologies for any inconvenience.

19/03/2014 - News Page updated with information about Vision Sports Ireland MayFest.

17/02/2014 - The 2013 Annual Report and Accounts are now available to download from the News Page.

31/01/2014 - Note: The Belfast event originally scheduled for 29th March will now take place on 10th May. Venue TBC.

06/01/2014 - VTHVI (Visiting Teacher Hearing & Visually Impaired) service in Ireland is up for review. See News Page for full details.

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All material on this site is Copyright © Albinism Fellowship unless otherwise stated. Unauthorised reproduction of any part this site, including photographs, is prohibited. Some photos on this site are courtesy of Positive Exposure - reproduction prohibited.
Website designed, built and maintained by Daniel Hill: All general enquiries should be e-mailed to
If a photograph of you or a member of your family appears on this website it has been placed here in good faith, should you not wish any photo(s) connected with you to be used on the site, please e-mail us and we will remove it as soon as we can.

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