Albinism Around the World

Albinism is a condition that occurs around the world, in all races, cultures and communities. Many countries have their own equivalent of the Albinism Fellowship, providing support and advice to people with albinism.

Albinism World Alliance

The Albinism World Alliance (AWA) is a network of albinism support groups in various countries. The AWA was founded in 1992 by representatives from Australia, Canada, Tanzania, the United Kingdom, and the United States of America. The AWA has grown to include albinism support groups in Germany, Mali, Malawi, the Netherlands, Puerto Rico, Norway, and South Africa, and other countries.

The objectives for the organization are:

  • To serve as a network of albinism support groups,
  • To share information regarding albinism,
  • To promote awareness of albinism internationally,
  • To promote development of albinism support groups throughout the world.
  • To share information about technology that will benefit persons with albinism.

Printed materials about albinism, in English and Spanish, are available through the National Organization for Albinism and Hypopigmentation (NOAH) in the United States of America. Some of the organizations in other countries also have printed materials in their languages.

The AWA provides information about albinism support groups in various countries. These support groups hold meetings, sponsor workshops and national conferences, publish newsletters, and conduct other networking activities. Groups in countries in Africa are also trying to help persons with albinism by providing sunscreens, eye glasses, and other optical aids. Some groups are also trying to help provide protective clothing and vocational assistance.

Through television appearances, newspaper articles, information packets for libraries, and outreach to professional persons, AWA and its member organizations spread knowledge about albinism and work to improve attitudes about individuals who have the condition.

For information about how your albinism related organization can become a member of the Albinism World Alliance, contact awa@albinism.org.

Albinism Organisations Worldwide

Africa | Europe | North America | Australasia

Africa

Albinism Society of Kenya (ASK)

Wilfred Maina
African Braille Center
020-601-212 or 020-608-692.

Albinism society of South Africa (ASSA)

Focus House
86 loveday street, PO Box 9881, Johannesburg
Tel/Fax: 0927 11 838 65 29
President: Nomasonto Mazibuko

Burkina Faso

Association nationale pour l'intégration des personnes albinos (ANIPA)

04 BP 8371, Ouagadougou 04
Tel: (226) 76 64 94 95
E-mail:
anipabf@yahoo.fr
President: Fabéré Sanon

Burundi

Albinos sans frontières

BP 1228, Bujumbura
E-mail: albinossf2002@yahoo.fr

Cameroon

Association mondiale pour la défense des intérêts et la solidarité des albinos (ASMODISA)

BP 13018, Yaoundé
Tel: (237) 21 73 40 Fax (237) 21 73 35
E-mail: asmodisa@yahoo.fr
President: Jean-Jacques Ndoudoumou

Congo – Brazzaville

SOS Enfants vulnérables sans frontières

153 rue Komono-Talangaï
BP 9179, Brazaville
E-mail: sosevf@yahoo.fr
President: Symphorien Sigrid Ayara

Gabon

ALBA

Rosalie Ngoua: B.P.: 2415 Libreville, Gabon
Tel: (241) 06253086
B.P.: 15377 Libreville tel; (241) 07521635
E-mail: rosaliengoua@yahoo.fr.

Mali

(association en projet)
Soumaïla Bayni Traore, Bamako
Tel: (223) 244 16 05 – (223) 649 22 72
E-mail: baynisoumaila@yahoo.fr
Ousmane Wele Diallo, Tel (223) 646 84 44
E-mail: lamo_n1@yahoo.fr

Central African Republic

Association nationale des albinos de Centrafrique (ANACA)

BP 1868 Bangui, Centrafrique
Tel: (236) 61 34 39 Fax (236) 61 00 78
E-mail: anaca_rca@yahoo.fr

Democratic Republic of Congo

Action pour la protection et l’intégration des personnes albinos (APIDA)

Goma
President: Constantin Wilondja
E-mail: apidagl_afriquecentral@yahoo.fr

Association pour la promotion et le développement de la personne albinos (APRODEPA)

1 avenue du 30 octobre – c/Makiso, immeuble CEDI,
Kisangani, province orientale, RDC
President : Jeanjanvier Nduma Tanganyika
Tel: (243) 812 36 60 54
E-mail: servainndumba@yahoo.fr

Albinos sans frontières

President : Auguy Bajikila Mudimba
28 B, quartier Mboloko, commune de Matete, Kinshasa ; BP 13.588 Kinshasa I,
E-mail: asfasblong@yahoo.fr
Website: www.asf-awb.org
Tel: (243) 999 93 93 23

Republic of Benin

Association des hommes de bonnes volontés pour le développement
BP 155, Pobe
E-mail: ahbvolonte@yahoo.fr
Coordinator: Anderson Bonou-Oussou

Senegal

Association nationale des albinos du Sénégal (ANAS)

Centre communautaire des albinos du Sénégal
Linda Robinson
Quartier Sampathé II
BP 3046 Thies
Tel: (221) 535 83 46 / 951 30 36 Tel face au centre 956 54 41
E-mail: anassenegal2006@yahoo.fr
President : Moumouny Cissokho

Alliance nationale pour la promotion à la réinsertion des albinos au Sénégal (ANPRAS)

Siège social : Quartier des Abattoirs, BP 294, Tambacounda
Tel: (221) 981 15 38
President: Aboubakry Sakho (Cellphone: (221) 642 91 14)
E-mail: arattfr2001fr@yahoo.fr

Tanzania

Tanzania Albinos Society

PO Box 9644, Dar el Salam
Tel: 255 51 203-8113, extension 40
President Hamisi Mwaimu

Togo

Cercle d'entraide aux albinos malvoyants (CEAM)

BP 20003, Lomé
E-mail: ceamong@hotmail.com
President: Soufiane Bayur

Nigeria

The Albino Foundation
76b Adeniyi Jones Avenue
Ikeja
Lagos, Nigeria
Tel: 234-1-2707926
E-mail: albinofoundation@aol.com
Website: www.thealbinofoundation.com/

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Europe

France

Génespoir

3 rue de la Paix, 35000 Rennes
Tel 33 877 58 20 33
President Béatrice Jouanne
Website :
www.genespoir.org
E-mail: genespoir@wanadoo.fr

SOS Albinos

64 avenue des Gobelins, 75013 Paris
Fax: 33 1 45 87 03 38
E-mail: pascale.jeambrun@wanadoo.fr
President Salif Keita

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North America

United States

National organization for albinism and hypopigmentation (NOAH)

PO Box 959, East Hampstead, NH 03826-0959, USA
Tel: (1) 603 887- 2310
Fax: (1) 800 648-2310
E-mail:
info@albinism.org
Website: www.albinism.org
President: Mike McGowan

Hermansky-Pudlak Syndrome Network Inc

One South Road
Oyster Bay, New York 11771-1905
Tel: (1) (516) 922-3440 / (Toll Free: 1(800) 789-9HPS)
Fax: (1) (516) 922-4022
E-mail: hpsnet@worldnet.att.net
Website: www.hpsnetwork.org/

The HPS Network also has an affiliated organisation 'HPS Network UK' in the United Kingdom.
See www.hpsnetwork.co.uk.

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Australasia

Australia

Albinism Fellowship of Australia

Website: www.albinismaustralia.org

New Zealand

Albinism Trust

Website: www.albinism.org.nz

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